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MyLifeline.org is partnering with Genentech to help move the metastatic breast cancer (MBC) conversation forward and help build a broader, more connected MBC community through Faces of MBC.

We are excited to be a part of the next phase of Faces of MBC, a Facebook application designed to help those living with MBC build a network of support and help caregivers and friends offer that support. The new Faces of MBC “Circle of Support” Facebook application allows those living with MBC to ask for the specific types of support they need ― whether it’s a day at the movies, a ride to the doctor or a homemade meal. Supporters can then select from this customized list and make a “promise” of support.

This app also is a place where family and friends can offer words of encouragement ― 77% of those living with MBC say simple words of encouragement help them keep fighting every day.
Visit www.facesofmbc.org to learn how to join the “Circle of Support” Facebook application and to find additional resources for those living with MBC and their family/friends.

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MyLifeLine.org is pleased to partner with Cancer and Careers on the 2nd Annual National Conference on Work & Cancer

Friday, June 22nd, 2012 in New York City

This FREE conference will explore the complexities working people face as they try to balance their cancer treatment and recovery with employment. Topics will include Job Search, Legal Issues, Health Insurance, Working During Treatment, and more. CEUs will be offered for oncology nurses and social workers, and applications for travel scholarships are available!

For more details or to register, please visit: www.cancerandcareers.org/conference.

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MyLifeLine.org is pleased to be a Conference Partner of the Cancer Rights Conference Series. Visit http://cancerrightsconference.org/boston/ to find information on their Boston conference.

We invite you to join us for these one-day conferences where participants will receive comprehensive information about the most common cancer-related legal issues. These free conferences will be  attended by patients, survivors, caregivers, healthcare providers, advocates, and business and community leaders.
The Cancer Legal Resource Center, a joint program of the Disability Rights Legal Center and Loyola Law School Los Angeles, is a national, nonprofit organization that provides free information and resources on cancer-related legal issues to people coping with cancer. A cancer diagnosis may carry with it a variety of potential legal issues, relating to insurance, access to care and government benefits, consumer rights, estate planning, and employment. While we recognize that it should not take legal resources to access healthcare, understand insurance options, or preserve one’s job, it frequently does. When information is easily accessible and understandable, we believe the quality of cancer survivorship improves.

The CLRC provides a comprehensive array of free services in English and Spanish to individuals coping with cancer-related legal issues. The CLRC hosts a toll-free, national Telephone Assistance Line (866-THE-CLRC), educational seminars, information on cancer-related public policy issues, and Cancer Rights Conferences on cancer-related legal issues. For more information about the services provided by the CLRC, please visit their website at www.CancerLegalResourceCenter.org.

 

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Team Kick Cancer provides financial grants to individuals or groups  committed to increasing cancer awareness. We focus on passionate individuals who want to take action to promote cancer awareness. This  mission will be accomplished by developing awareness programs, educational messages, or statements that will be communicated on a local level.

Currently Accepting Applications for the 2012 Give Program! Find out more

What do we do?

Team Kick Cancer produces local events such as galas, runs and walks, and concerts to raise monies that fund the Team Kick Cancer Grants.

Team Kick Cancer Grants

Grants are awarded to help individuals educate others about cancer as well as build local programs, distribute  information and make a statement or create a buzz about cancer. The  educational cancer message will vary. It depends on how each individual  defines cancer awareness and what aspect of cancer awareness he/she is  personally passionate about. No matter how you define it, no matter what your passion, Team Kick Cancer is here to support you and our fight against cancer.

How can you make a difference?

There are excellent organizations that  provide exceptional information about cancer. However, most of these  operate on a national level. We need to deliver our message a little  closer to home, at a local level. You can make a difference by sharing  important information about cancer within your own community.

 

Two ways to Join the Team:

1. Apply for a Team Kick Cancer Grant

2. Participate in a Team Kick Cancer event.
Apply for a grant before March 31st! http://teamkickcancer.org/give-program.html

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What is Proton Therapy?

March 8th, 2012 | Posted by mllblog in Cancer Patients - (0 Comments)

Guest Post from Felicia Baratz

Cancer treatments often take such a toll on the body because the treatments target all of the body’s cells, not just the cancer cells. Proton beam therapy, commonly known as proton therapy, helps cancer treatments target tumor areas without wreaking havoc on healthy cells. Not only can this spare your normal cells, but physicians can actually deliver higher concentrations of the laser beam to your tumors. For cancer patients and their families, it’s important to learn as much as you can about a treatment so that they can recover quickly and go back to living their lives.

What is proton beam therapy?
A proton is a hydrogen atom that does not contain electrons. Specialized equipment, known as a cyclotron or a synchrotron, energizes the protons for treatment. Then, physicians use specially-shaped devices and magnetic fields to control the dose and direction of the protons, targeting only tumors. Unlike existing radiation, which delivers x-rays or gamma rays through the entire body, proton therapy targets cancer cells and reduces delivery of the beam to healthy cells. Proton therapy is a newer form of radiation therapy, and is in the same vein of cancer treatment as radiation.

For family members or caregivers who will be taking care of a patient receiving proton therapy, there may be questions about how to care for a patient during his or her therapy. Each patient is different, but there are relatively few side effects to deal with. And because almost all proton therapy treatments are outpatient, talking to the doctor or specialist administering the therapy is best.

Who can benefit from proton therapy?

Not every patient can benefit from proton therapy, but people with certain types of cancer will find proton therapy effective. Proton therapy can be used for brain tumors (particularly meningiomas), eye melanomas, and head and neck cancers. Because every tumor is shaped differently, your team of doctors will provide you with patient-specific hardware that helps control the proton beam and maximize the dosage, while protecting healthy cells. During the course of proton beam therapy, you’ll receive proton beams from different directions; this helps reduce the likelihood of health complications from high beam doses. This therapy can also be effective for children, whose organs are still developing and may be damaged by more invasive therapies.

What to expect
If your doctor thinks proton therapy is a good fit for you, he or she may suggest it; however, don’t be afraid to suggest the treatment to your doctor as well. If you begin proton therapy, your radiation therapy team will help you find the best, most comfortable position for you to experience treatment. This will naturally depend on the location of your tumor. They will also perform imaging test to check the proton path, ensuring that the proton targets the cancer cells.

Before you commit to proton therapy, check with your health insurance provider to find out whether the insurance policy will cover this cancer therapy. Not all types of radiation or proton therapy will be covered by insurance, so find out the facts before you commit.

Where to go

Talk to doctors at your local cancer care center to find out about proton therapy treatments near you. While this is a newer form of radiation, expect to find proton therapy offered at major cancer hospitals like IU Health Proton Therapy in Indianapolis.

Prostate cancer patients who received proton therapy praised the treatment for its lack of harmful side effects and lack of pain during the treatment. Some patients also reported having a normal energy level and being able to continue performing activities of daily living they already enjoyed.

Felicia Baratz is a health enthusiast and blogger residing in Indianapolis, IN. As a caregiver, Felicia’s experiences heavily assist in her writing. Being a frequent contributor to doseofmyown.com, Felicia touches on the subjects of health, nutrition and overall well-being.

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You are Invited: To an Extraordinary Conversation about The Landmark Forum for those touched by Cancer

Imagine life beyond your wildest dreams…
Experiencing each day as new and unique, free from the constraints and limitations of the past… (or of illness), full of possibility, self expression, and aliveness; with full freedom to make a difference for yourself and others.
Over 90% of the people who complete The Landmark Forum report the following benefits:

  • Greater effectiveness in relating to others
  • Increased personal productivity
  • Freedom in making the right choices/Pursuing what is important to you
  • Greater confidence
  • Living life more fully

Which of these benefits would make a difference in your life?

The Landmark Forum is a three-day-and-one-evening course designed to unlock the limitless possibilities in your life.

SPECIAL INTRODUCTION FOR CANCER SURVIVORS AND CAREGIVERS

SATURDAY MARCH 10TH 9 a.m. to Noon

600 S. Cherry Street in Glendale Suite #314

Please RSVP to: asinglecell (at) gmail.com or call Tracy at 720-252-5189

We invite you to find out what The Landmark Forum is, what it makes available, and what it could provide for you and your life. Just bring yourself and a project, issue, or relationship you would like to take to the next level. Please bring your calendar and be prepared to register if you see The Landmark Forum as an opportunity that would make a difference for you. Tuition is currently $510 per person.

 

Upcoming Landmark Forums: (the last day of each session is evening 7-10 p.m.)

April 20, 21, 22, 24

June 1, 2, 3, 5

July 6, 7, 8, 10

August 17, 18, 19, 21

September 21, 22, 23, 25

November 2, 3, 4, 6

Testimonial from a participant

I credit Landmark education with the perspective I am able to have on life now, seeing possibilities instead of problems. Even through my most recent health issues – with some masses showing up in my pelvic region in December – I am able to live my life without fear or stress in this situation. It has been a tremendous blessing to me to gain this perspective. My relationships have also been considerably improved as well. I no longer blame anyone else for anything in my life, and am able to take full responsibility for whatever is missing in each relationship and provide it when needed. I’m sure you can imagine what a blessing that is. (Or maybe you can’t even imagine having the ability to do that. Come find out more about how that happens through this amazing work.)

I am currently  coaching in Landmark’s Self Expression and Leadership Program. I participated in this program two years ago in the spring, and out of it created an annual canoe trip for single cancer survivors. This is what one of the participants recently shared: “I went on a trip to Colorado, a trip with fellow cancer survivors that quite literally changed my life. A trip that opened me up to the possibility of living a full life with illness, without denying its existence. And that changed everything.”

I am thrilled that one of the head coaches from the program I am currently part of is offering an introduction to the Landmark Forum specifically for cancer survivors and caregivers. She is not a survivor herself, but her mom was recently diagnosed with breast cancer. Knowing Belinda as I do, I am so confident she will provide an excellent opportunity to learn more about this education and to address an area of your life where you might be challenged. You will also be invited to register for the Landmark Forum (offered on a variety of dates throughout the year), but even if you choose not to do so, I know you will find the chance to connect with other cancer survivors and focus on your own needs valuable.”

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Save the Date

Saturday, May 5, 2012 

As MyLifeLine.org celebrates five years as a non-profit organization supporting

cancer patients and their families, we hope you will join us for the
2012 Jockeys, Juleps & Jazz
gala event!

 

Four Seasons Hotel Denver
1111 14th Street, Denver, CO 80202

3:00 p.m. – 7:00 p.m.

Derby attire is a must! Please join us for entertainment, live and silent auctions,
mint juleps and, of course, the Kentucky Derby simulcast!

EARLY BIRD REGISTRATION 

 

February 22, 2012 – March 2, 2012 – Individual tickets $75 per person
After March 3, 2012 – Individual tickets $100 per person
Look for your invitation with more details.
Registration opens February 22! Space is limited.
BOARD OF DIRECTORS
Dennis Wakabayashi – Jill Mitchell, Phd, LCSW – Jason Wagner – Joan Heller
Gregg Denhoffer – Barb Findlay – Rob Fisher, MD – Amy Fleming – Irene Gallagher
Jack Hill – Carol Karshmer, MD – Dan Mulligan – Laura Perkins
Kim Van Deraa – Marcia Donziger 

COMMITTEE MEMBERS
Diedre Wooden – Sheri Muilenburg – Anna Clark – Marissa Buzan – Kirsten Olivet
Jessica Schmucker – Carolann Samuels – Karla Shaffer

Corporate and Family & Friends sponsorships available. For more information, 

please contact diedre (at) mylifeline.org

MyLifeLine.org Cancer Foundation is a charity that believes a strong support community is critical for cancer patients. Every day we provide personal, private websites at no cost to cancer patients and caregivers so they can easily connect with family and friends during the treatment process, because no patient should ever feel alone.

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‘Announcing Our New Executive Director’.

Check out our January newsletter with a bio of our new Executive Director, a letter from Marcia, and a sneak peek of what’s to come in 2012.

 

 

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Guest Post By Lisa Roddy

January is cervical cancer awareness month, part of a global initiative to eradicate the second-most common cancer in women. Over 12,000 women in the US will be diagnosed with cervical cancer in 2012, with more than 4,000 dying from the disease. Research shows that over 70% of cervical cancer cases worldwide are caused by the virus HPV – it also estimates that at least half of those who are sexually active will be infected with HPV at some point in their lives.

This disease starts on the surface of the cervix and usually develops slowly. The first stage, called dysplasia, is a precancerous condition that physicians can detect through a Pap smear. Dysplasia is 100 percent treatable, which tells how vital regular Pap smears are to a woman’s health.

Women diagnosed with cervical cancer have three main treatment options, depending on several factors, including the stage of the cancer, the woman’s health status and whether she plans to have children in the future.

Surgery: During surgery, doctors remove precancerous and cancerous tissue from the cervix and uterus if it is found there as well. Surgeons have various ways to perform this procedure without damaging the cervix or removing the uterus so that a woman can still have children.

Types of surgery for cervical cancer include:

  • Conization: Conization, or cone biopsy, removes a cone-shaped piece of tissue from the cervix and cervical canal.  Doctors can use conization to diagnose cervical cancer as well as to treat it in its very early stages.
  • Loop Electrosurgical Excision Procedure (LEEP): LEEP uses an electrical current passed through a thin wire as a knife to cut away abnormal tissue.
  • Cryosurgery: Cryosurgery applies extreme cold to freeze or destroy abnormal tissue.
  • Hysterectomy: During a hysterectomy, surgeons remove the uterus, including the cervix. Doctors can perform a hysterectomy vaginally, abdominally, or laparoscopically (using small incisions).
  • Radical Hysterectomy: Along with the uterus and cervix, a radical hysterectomy removes part of the vagina. In most cases, surgeons also remove nearby lymph nodes, the ovaries and fallopian tubes.

Radiation: High-energy radiation kills cancer cells and shrinks tumors. Generally, radiation can treat cervical cancer that has spread beyond the pelvis or that has recurred.

Doctors use two main types of radiation therapy to treat cervical cancer:

  • External Beam Radiation (EBT): The most common form of radiation, EBT, similar to an x-ray, uses a carefully focused machine to deliver a high beam of radiation onto the area of the body where cancer is present.
  • Brachytherapy: During brachytherapy, doctors place tiny, radioactive filled devices, seeds or needles inside the woman’s body, near the cervix, for a period of time.

Chemotherapy: Chemotherapy for cervical cancer uses cytotoxic, cell killing drugs to destroy cancers cells that have spread from the primary tumor. Chemotherapy is usually prescribed in combination with radiation therapy for advanced cervical cancer.

  • Cisplatin: A platinum-based drug, Cisplatin, is the primary drug used in chemotherapy for cervical cancer. Cisplatin triggers apoptosis, causing cervical cancer cells to die.

Side effects for cervical cancer treatment vary by type. Women should consult with their physician about which treatment is most appropriate for their specific type of cervical cancer.

Cervical cancer survival has significantly increased over the years. The average combined five-year survival rate for women with invasive cervical cancer is around 71%, with overall survival for localized cervical cancer over 90%.

About Lisa Roddy
Lisa is the Vice President of Product and Marketing at Medify, Inc. in Seattle, WA. Medify is a leading provider of data-driven consumer health solutions that mines hundreds of millions of real patient experiences from medical research and makes them discoverable, trackable, and shareable. Lisa is also a breast cancer survivor. Prior to joining Medify, Lisa was Director, Strategic Development at Premera Blue Cross. She holds an MBA from Babson College and a BS from Northeastern University.

 

Sources:

https://www.medify.com/insights/article/20307840
https://www.medify.com/insights/compare?condition=Uterine%20Cervical%20Dysplasia&tab=treatments
https://www.medify.com/treatments-conditions/Radiation%20Therapy-treatment-Cervix%20Cancer
https://www.medify.com/treatments-conditions/Adjuvant%20Chemotherapy-treatment-Cervix%20Cancer
https://www.medify.com/treatments-conditions/Cisplatin-treatment-Cervix%20Cancer
https://www.medify.com/conditions/cervix-cancer
http://www.seattlecca.org/diseases/cervical-cancer-facts.cfm
http://health.nytimes.com/health/guides/disease/cervical-cancer/overview.html#Treatment

 

 

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You are invited to participate in the thesis study, “Assessing Fatigue and Physical Activity Levels in Cancer Survivors.” This study has been approved by the Institutional Review Board at Georgia College & State University.

The purpose of this study is to assess fatigue and physical activity levels of cancer survivors before, during, and after treatment.  Further, it will investigate the relationship between physical activity levels and fatigue levels.  Please use the following link to complete the survey.

http://www.surveymonkey.com/s/cancerfatigue

The Survey of Fatigue and Physical Activity Levels in Cancer Survivors should take no more than 10-15 minutes to complete. We ask that you complete the survey no later than Jan. 31, 2012.

If you have any questions concerning this study, please contact Liz Hathaway, MPH at elizabeth.hathaway@bobcats.gcsu.edu.

Thank you for your support of this investigation! The study results will provide important information about fatigue and physical activity levels in cancer survivors.

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