Category Archives: Events

MyLifeLine.org hosts annual Jockeys, Juleps & Jazz event

MyLifeLine.org’s annual Jockeys, Juleps and Jazz Kentucky Derby fundraising event was a tremendous success. Friends, members, sponsors and supporters came out in their festive Derby attire to support MyLifeLine.org and raise vital funds to support our mission.

On May 7, more than 300 guests dined on a traditional menu of southern cuisine, sipped on signature mint juleps, bid on silent and live auction items and cheered on the running of the 142nd Kentucky Derby.

The event was also an opportunity to celebrate the mission of MyLifeLine.org and honor two awardees with the George Karl Courage and Visionary Awards.
Eisai was awarded the George Karl Visionary Award, accepted by Teresa Cronin, Director, Corporate Advocacy. Eisai is an industry leader in patient-centered healthcare and we are honored to work with them to serve all people affected by cancer.

The George Karl Courage Award was presented to the Cronk Family, MyLifeLine.org members and caregivers to their son, Brayden, who was diagnosed with Acute Lymphoblastic Leukemia at age 8. The Cronks use MyLifeLine.org to update friends and family and get the support they need during Brayden’s treatment.

The Jockeys, Juleps and Jazz event raised approximently $225,000, allowing MyLifeLine.org to serve even more people affected by cancer and continue to develop innovative and supportive programs for members and guests. Thank you to everyone who attended, sponsored and donated their time and resources to the event.

View and download photos from the 2016 event on our Shutterfly site.

Jockeys, Juleps and Jazz

The Cronk Family at Jockeys, Juleps & Jazz.

World Cancer Day 2016: We Can. I Can.

Thursday, February 4 is World Cancer Day, a global event to unite the world’s population in the fight against cancer.

The 2016-2018 theme is a 3-year campaign taking place under the tagline ‘We Can. I Can.,” which is a chance to reflect on what we can do, make a pledge and take action in the fight against cancer.

At MyLifeLine.org Cancer Foundation, ‘We Can’:

  • Support others: MyLifeLine.org knows that social, emotional and practical support is critical for cancer patients, which is why we are focused on connecting cancer patients and caregivers to their friends and family for support. Members on MyLifeLine.org are empowered by messages of love and support from their friends and family.
  • Help cancer patients take control of their cancer journey: MyLifeLine.org offers cancer patients and caregivers a compressive tool to take control of their communication and practical needs during treatment. We provide unique communication and stress-reducing tools that allow cancer patients and caregivers to share their journey and focus on healing.
  • Allow cancer patients and caregivers share their story: Cancer survivors can give hope to newly diagnosed patients, which is why MyLifeLine.org gives people affected by cancer a platform to share their story on our Inspirational Stories page.

What pledge will you make on World Cancer Day?

World Cancer Day - I Can Support Others

 

Honoring National Hereditary Breast and Ovarian Cancer Week

This week marks National Hereditary Breast and Ovarian Cancer (HBOC) Week, a time to raise awareness and recognize those affected by hereditary cancer.

HBOC week transitions between Ovarian Cancer Awareness Month and Breast Cancer Awareness Month and recognizes anyone affected by hereditary breast or ovarian cancer.

Hereditary Breast and Ovarian Cancer Fast Facts

  • About 20 to 25 percent of women diagnosed with ovarian cancer have a hereditary tendency to develop the disease.
  • The lifetime ovarian cancer risk for women with a BRCA1 mutation is estimated to be between 35% and 70%.
  • Women who have one first-degree relative with ovarian cancer but no known genetic mutation still have an increased risk of developing ovarian cancer.
  • The lifetime risk of a woman who has a first degree relative with ovarian cancer is five percent (the average woman’s lifetime risk is 1.4 percent).
  • Women who have had breast cancer have an increased risk of ovarian cancer.
  • Both women and men can inherit cancer-causing gene mutations, and both men and women can pass such mutations to daughters and sons.

Additional Resources:

National Hereditary Breast and Ovarian Cancer Week

George Karl pictured with the George Karl Courage recipient, Roberta Aberle

Jockeys, Juleps & Jazz Wrap Up

Derby snapshot

Pictured left to right: Marketing & Outreach Coordinator, Margo Christenson; Chief Operating Officer, Tricia McEuen; George Karl; Chief Mission Officer, Marcia Donziger; Auctioneer, Reggie Rivers; Board Member, Lizzy Morton

MyLifeLine.org’s annual Jockeys, Juleps & Jazz Kentucky Derby fundraising event was a tremendous success. Friends, members, sponsors and supporters came out in their festive Derby attire to support the mission of MyLifeLine.org and raise vital funds to ensure no one faces cancer alone.

On May 2, more than 400 guests dined on a traditional menu of southern cuisine, sipped on signature mint juleps, viewed a live comedy show, bid on silent and live auction items and cheered on the running of the 141st Kentucky Derby. The event was also an opportunity to celebrate the mission of MyLifeLine.org and honor two awardees with the George Karl Courage and Visionary Awards.

Genentech was awarded the George Karl Visionary Award, accepted by Jen Mills, Director of Advocacy Relations. Their loyal support to our technology and innovation programs has allowed MyLifeLine.org to further our mission of supporting cancer patients and caregivers.

The George Karl Courage Award was presented to Roberta Aberle, a MyLifeLine.org member and survivor of a rare cancer, Primary Peritoneal. Roberta writes on her personal website as an outlet to cope, connect and inspire many with her vibrant and courageous outlook on life.

The Jockeys, Juleps & Jazz event raised over $270,000, allowing MyLifeLine.org to serve even more people affected by cancer and continue to develop innovative and supportive programs for members and guests. Thank you to everyone who attended, sponsored and donated their time and resources to the event. MyLifeLine.org is grateful for the generosity of all the event supporters!

To see more photos from Jockeys, Juleps & Jazz, please visit our Shutterfly site.

MyLifeLine.org Attends Oncology Nursing Society 40th Annual Congress

MyLifeLine.org had the honor and privilege of sharing our mission with over 3,000 oncology nursing professionals at the Oncology Nursing Society 40th Annual Congress in Orlando, FL. In addition to thanking these professionals for theirdedication and care of those who’ve been diagnosed with cancer, we were able talk about the important tools that MyLifeLine.org provides to patients and caregivers.

They were excited to hear about our Helping Calendar that allows patients and caregivers to easily coordinate help such as rides to chemo or

Tricia McEuen, MyLifeLine.org Chief Operating Officer and Steve, a MyLifeLine.org volunteer, at ONS

Tricia McEuen, MyLifeLine.org Chief Operating Officer and Steve, a MyLifeLine.org volunteer, at ONS

meals for the family; the Giving Angels page where the overwhelming cost of cancer treatment can be lessened by raising funds in a private manner that allows friends and family to contribute; the cancer resources available through our website that are vetted specifically for cancer patients; and the connection to their community of support that is critical during this extremely difficult time in their life.

Very shortly, MyLifeLine.org will be mailing out over 10,000 postcards to over 230 cancer centers around the country. These postcards will be shared with newly diagnosed cancer patients so they can build their online support community that will provide strength, courage, hope and inspiration during their cancer journey.

MyLifeLine.org is proud to be an exhibitor at ONS Congress and are grateful we can provide the tool that connects cancer patients and caregivers with their circle of family and friends.

WorldCancerDayLogo

Today is World Cancer Day

Every year on February 4, World Cancer Day connects organizations and people around the world to unite in the global fight against cancer. World Cancer Day aims to raise awareness that there has been substantial progress made but there is also much to be done at an individual, community and government level to enact positive change for all people affected by cancer.

World Cancer Day 2015 is taking place under the tagline ‘Not beyond us’ and addresses the challenges that cancer patients and caregivers face and how solutions exist that are in reach. One key area of focus on World Cancer Day 2015 is maximizing quality of life by understanding and responding to the full impact of cancer on the emotional and mental well-being level.

A cancer diagnosis can have serious impact on a person’s emotional, mental and physical state. To meet this challenge, all people affected by cancer must be empowered to maximize their quality of life by reaching out to others for support. With providing social and emotional support at the core of MyLifeLine.org’s mission, we help address this need by equipping cancer patients and caregivers with a comprehensive tool to receive necessary support from their family and friends.

Under the World Cancer Day 2015 tagline, it is ‘Not beyond us’ to meet the challenge if the emotional and social impacts of cancer are taken as seriously as the physical impacts and individuals feel empowered to talk about their needs and reach out for support. Cancer patients and their caregivers can utilize MyLifeLine.org to build a social support network and help address the emotional and mental challenges that come with a cancer diagnosis.

world-cancer-day

Support MyLifeLine.org on Giving Tuesday

MyLifeLine.org wishes you all a Happy Thanksgiving filled with family and friends. We believe connecting with the people you love is an important part of dealing with a cancer diagnosis, which is why we provide free patient websites where it’s easy to connect.

This year, help us continue providing our services at no cost to patients, by participating in Giving Tuesday on December 2, 2014. After Black Friday and Cyber Monday, Giving Tuesday is a global day dedicated to giving back. Nonprofits, large corporations, retailers and more will come together on Giving Tuesday – a movement to celebrate giving and kick-off the holiday giving season.

Our goal for Giving Tuesday is to raise $2,600 – enough to cover the cost of 20 patient websites for one year. We’ve set up a Giving Tuesday crowd funding campaign to help us accomplish our goal. If you participate, you could get a meeting with former NBA coach of the year and cancer survivor George Karl, or a printable card saying you made a donation in someone’s honor.

If you are unable to donate, please visit our crowd funding page and share it on Twitter, Facebook or your MyLifeLine.org page. Your support of our organization is support for all people affected by cancer.

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Tricia, a 5-year breast cancer survivor and MyLifeLine.org team member takes a #Ribboning picture at the National Women's Survivors Convention

MyLifeLine.org Attends National Women’s Survivors Convention

Welcome to Survivorville!  The Women Survivors Alliance (WSA) was created to be the voice of survivorship and to bring recognition of survivorship issues to a public stage. In July, MyLifeLine.org attended the National Women’s Survivors Convention in Nashville. We were privileged to hear honorary co-chairs Bill and Giuliana Rancic share their story of determination and hope when Guiliana was diagnosed with breast cancer.

We attended empowerment sessions that focused on connection, inspiration, reinvention and transformation. Fellow patient advocates Sara Goldberger from Cancer Support Community and Jonny Imerman from Imerman Angels, shared their own cancer survivorship experiences by leading lively, thought-provoking sessions that provided survivors with tools to add to their personal survivor care plan.

As a 5-year breast cancer survivor, it was wonderful to surround myself with hundreds of fellow survivors, in all stages of survivorship, who are all focused on the same thing – learning to survive after a cancer diagnosis.  It was heart-warming to visit with so many other patient advocates who are passionate about helping those affected by cancer.   I was honored to have the opportunity to talk directly with many courageous survivors and share the challenges and triumphs of survivorship.

Tricia, a 5-year breast cancer survivor and MyLifeLine.org team member takes a #Ribboning picture at the National Women's Survivors Convention

Tricia, a 5-year breast cancer survivor and MyLifeLine.org team member, takes a #Ribboning picture at the National Women’s Survivors Convention in Nashville.

MyLifeLine.org staff at their AOSW booth

MyLifeLine.org Makes Connections Through Cancer Conferences

Highlights from the Association of Oncology Social Work (AOSW) Cancer Conference

MyLifeLine.org recently attended the Association of Oncology Social Work (AOSW) conference in Baltimore, MD. AOSW is a non-profit, international, 501(c)3 organization with over 1,000 members from around the world who are committed to advancing excellence in psychosocial care of persons with cancer, their families and their caregivers. This important conference allowed MyLifeLine.org to directly connect with over 500 oncology social workers and other Patient Advocate organizations who directly serve those affected by cancer.

MyLifeLine.org staff at their AOSW booth

MyLifeLine.org staff at their AOSW booth

As booth exhibitors at this conference, we had the opportunity to educate over 500 oncology social workers about the psychosocial services provided by MyLifeLine.org and were able to get educational materials in the hands of those who are directly connected to cancer patients.

MyLifeLine.org networked with other Patient Advocate organizations including Patient Access Network (PAN), Ulman Cancer Fund, Triage Cancer, The 4th Angel Mentoring Program and Cancer Support Community and learned more about what those organizations have to offer cancer patients, caregivers and families affected by cancer.

MyLifeLine.org Founder Marica Donziger reflects on American Society of Clinical Oncologists (ASCO) Cancer Conference

Every first weekend of June in beautiful Chicago, ASCO (American Society of Clinical Oncologists) hosts a monumental conference.  This year marked the 50th annual conference.  Thirty thousand oncology professionals converge into McCormick Convention Center for ONE core reason…to make a difference in the lives of people affected by cancer.   While the majority are physicians – 50% from the USA, 50% from other countries, it’s quite the international experience.  In addition to doctors, there are thousands of others including researchers, industry professionals, patient advocates, and more.

MyLifeLine.org Cancer Foundation exhibits in the Patient Advocate center – this marked our 7th year participating in order to bring awareness to all attendees about the significant social-emotional stress that cancer drives into a family after a diagnosis and the solutions we provide.   At ASCO, we reconnect with partners and advocate organizations to become educated on how we can all strive for efficiency and effectiveness.  ASCO has become a critical cornerstone for all cancer advocates to come together and learn about new advancements in research and support programming.

Every year, I’m in awe of tens of thousands of people serving the cancer community.  It’s really inspiring…MyLifeLine.org will continue to stay involved and active to make sure our program is relevant and beneficial to the families we serve daily.

MyLifeLine.org staff at their AACR booth

MyLifeLine attends American Association for Cancer Research (AACR) Conference

In April, MyLifeLine attended the American Association for Cancer Research Conference in San Diego. MyLifeLine was part of the Advocate Pavilion, which featured more than 20 nonprofit cancer organizations that were there to educate cancer researchers, advocates, survivors and each other about our missions to serve people affected by cancer.

During the meeting, MyLifeLine representatives had the honor and pleasure of speaking to the Scientist-Survivor Program, a group of cancer advocates and survivors, about the importance of social and emotional connection and how it can improve patient outcomes.

We were especially honored to be joined by Dr. Steven Rosen, provost & chief scientific officer at City of Hope and a member of the MyLifeLine Oncology Advisory Council. Dr. Rosen provided the medical perspective on the benefits of a support network for both patients and families.

It was a true privilege to attend the conference and to connect with other organizations that advocate for people facing a cancer diagnosis.

MyLifeLine.org staff at their AACR booth

MyLifeLine.org staff at their AACR booth