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Check out our June Newsletter. Find information on how to support a friend with cancer, a yummy recipe, and more!

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MyLifeLine.org created a tip sheet on how to Help a Friend with Cancer.

Download the tip sheet.

Post comments below on actions you have taken to help a friend with cancer.

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Today we announce the first version of the mobile optimized website. If you have a smart phone, you can view some of the main features from your phone. With a mobile optimized version, we hope that patients and caregivers can access thier website on the go and make updates even if they don’t have access to a computer.

My Updates: Patients and Caregivers can add new My Updates and friends and family can view and comment on the udpates.

Guest Messages: Friends and family can leave inspiring messages  and the patient can read all the loving messages without having to get on their computer to catch up.

Helping Calendar: Patients and caregivers can add and edit events on the Helping Calendar. As well, as friends and family can sign up to help.

Photo Gallery: The photo gallery is viewable from a smartphone, but with this version, you won’t be able to upload a photo directly to the photo gallery.

 See below for a few screen shots from the mobile version. Tell someone you know with cancer about MyLifeLine.org today.

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There are many ways you can help a friend with cancer. I found this great piece on the Fresh Brewed Life, “ 15 Ways to Really Help a Friend with Cancer”. It mentions practical things you can do for a friend with cancer, like laundry or suggesting a “date” for your spouses because the spouse of a person with cancer is often neglected. Don’t forget about their children or spouse, offer to do fun and supportive things for them as well. Think outside of the box when trying to find ways to help your friend with cancer. Instead of baking them another lasagna, ask them what their favorite restaurant is and deliver their favorite meal with a DVD for a nice, relaxing  night in.

 In this article from Women’s Health Magazine a survivor speaks candidly about what not to do or say for a friend with cancer.

 If you know of other great tips, please comment below!

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Check out this great spotlight about  MyLifeLine.org at  onclive.com . The article has a great overview of our history, features, initiatives and impact!

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Here’s some of our favorite records set to Break Cancer!

Standing Up Against Cancer in the most languages

http://urdb.org/world-record/group-social-workers-interpreters-nurses-stand-up-against-cancer-the-languages

A group of 42 people composed of social workers, interpreters, and nurses, stand up against cancer in the most languages.

Lit Up “Robots” Break Cancer

http://urdb.org/world-record/cyclists-doing-the-robot-dance-while-wrapped-christmas-lights

52 cyclists danced the robot while wrapped in Christmas lights. The participants were a group of cyclists on a long distance bike ride to raise money for cancer research.

Most Cancer Notes Thrown in the Trash

http://urdb.org/world-record/number-cancer-gets-trashed-30-seconds

Mason Kinard, from the Nurse Oncology Education Program,  trashed “Cancer” 28 times in 30 seconds.

Most Comments on a Cancer Related Blog Post in 24 Hours

http://urdb.org/world-record/cancer-gets-wordpressed-24-hours

Joni Watson posted a WordPress blog post about cancer and received 13 comments. 

Check out more videos at http://urdb.org/breakcancer.

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Part 2 of our Summary of Caregiving for Your Loved One with Cancer from CancerCare

In Part 1 I we reviewed the basic tips for caregivers. Part 2 is about long distance caregiving and taking care of yourself as a caregiver.

Don’t stress if your loved one is thousands of miles away. You can still be an integral part of their caregiving team.

Long Distance Caregiving:

  • Focus on what you can do. For example, schedule appointments, pay bills online, set up a personal website for them.
  • Make the most of your visits and try to schedule some visits during the week, so you can meet the appropriate doctors, etc. Plan some visits when your loved one has appointments scheduled.
  • Meet your loved ones neighbors when you visit, so they can check in on them and be your eyes and ears, when you’re gone.
  • Ask your loved ones local friends to help with tasks you can’t do from far way.

One of the most important things to remember is to take care of yourself as well.

Taking Care of Yourself

            Stay Healthy

  • Take time to exercise and keep yourself healthy.
  • Remember healthy eating habits. Pack healthy snacks for long hospital visits.
  • SLEEP!
  • REST! Practice deep breathing, mediation, and gentle stretching to decrease stress.
  • Don’t neglect your own check ups, screenings, and medications.

Getting Emotional Support

  • Allow yourself to take a break once in a while. Listen to music, or go on a quiet walk.
  • Be aware of your limits. You’re allowed to say no if you are over extended.
  • Journal your thoughts.
    • Don’t be afraid to ask other friends or family members for help. Keeping open lines of communication is best.
    • Visit with a mental health professional if you’re having bad feelings or worrying.
    • Seek out a support group for caregivers.
    • Don’t be too hard on yourself. Be realistic about how you can and cannot provide caregiving duties.

Lastly, here are some important final thoughts from the article on cargiving for your loved one.

  • Provide a way for other family members and friends to help. Set up a website at www.mylifeline.org to post visiting hours, meal delivery schedules, transportation needs, etc…(this isn’t mentioned in the article, but I thought I’d add it in!)
  • Check out respite care programs. If you need to run errands and can’t be with your loved one, you could schedule a respite caregiver.
  • Know your rights. Talk with your employer about what your options are for a leave of absence.
  • Call CancerCare ®  

Visit CancerCare’s Care Giver Support Page for more information.

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When we created MyLifeLine.org, we wanted to help patients with the emotional part of their cancer by allowing their friends and family to be there for them.  Through website posts, helping calendars and most importantly encouraging words from loved ones, we’ve brought patient support groups into their home and hospital rooms.

We are working hard to make this experience even better with more medical resources, fundraising tips, and support information for friends and family. With Facebook and Twitter posts, emails and blogs we are making MyLifeLine.org a smaller community no matter the number of members. MyLifeLine.org is a resource for anyone going through cancer or anyone who knows someone with this awful disease. We want to hear from you and want you to help make MyLifeline.org part of your community.

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You’ll find resources here related to Caregivers and Friends and Family of those affected by cancer. We believe no patient should ever feel alone and you shouldn’t either!

Summary of Caregiving for Your Loved One with Cancer from CancerCare

Typically a caregiver can provide support in three ways: Medical, Emotional, and Practical support.

Medical Support:

  • Gather information about the diagnosis and possible treatment options
  • Attend medical visits to take notes and ask questions
  • Stay attuned to your loved ones physical capabilities and offer help when needed
  • Record any special instructions and explore home health services if necessary

Emotional Support:

  • Listen
  • Support their decisions
  • Seek out information on support groups if necessary
  • Continue to provide support after treatment is over.  Patients tend to feel lonely immediately after treatment is over because day to day contact ends.

Practical Support:

  • Review insurance policies
  • Understand what your loved one is entitled to
  • Apply for financial aid if necessary

Visit CancerCare’s Care Giver Support Page for more information.

 

 

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