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Tell Someone About MyLifeLine.org

July 29th, 2011 | Posted by mllblog in Cancer Patients | Caregivers/Friends and Family | MyLifeLine.org News - (0 Comments)

Earlier this week we posted an article about social media and how it benefits cancer patients and their caregivers.

We put the article in our latest newsletter so you can forward it to anyone you know who has been affected by cancer. Check out our July Newsletter MyLifeLine.org’s July Newsletter and be sure tell a friend about MyLifeLine.org

 Tell a Friend about MyLifeLine.org

 There are many ways to share our service so that those affected by cancer can create an online support community and begin benefiting from the connections and inspiration.    

  • On our homepage click on “Tell a Friend” in the bottom left corner. This will send them an email about MyLifeLine.org.
  • Forward this newsletter to them, so they can read the article mentioned above and learn about the benefits of social media.    
  • Like us on facebook and share our page with your friends. On facebook we’ll post tips, event news, resources, and more 
  • Follow us on twitter and you’ll find tips to help someone with cancer, event announcements from MyLifeLine.org and other cancer non-profits, resources for cancer patients, and much much more. 
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New Cancer Center Partner – Premiere Oncology Foundation

June 28th, 2011 | Posted by mllblog in Cancer Centers/Cancer Nonprofits | Cancer Patients | Caregivers/Friends and Family | MyLifeLine.org News - (2 Comments)

premiere oncology foundation

MyLifeLine.org is proud to partner with the Premiere Oncology Foundation to provide their patients with free, personal websites.

The Premiere Oncology Foundation (POF) provides services that address the physical, mental and emotional needs of patient and caregivers. In addition to individual and group counseling, POF’s programs include a full range of integrative medicine services. All of these services are not only provided for patients, family members and caregivers, but are open to the community at large.

We are here to serve our patients and our community. We believe every person who battles cancer is unique and must be treated as a whole person. We believe that every cancer patient deserves access to the best and most innovative treatments available. We believe in the science of research and the art of medicine. We are here to help cancer patients and their loved ones live their lives to the fullest. We believe in integrative medicine by providing patients with easy access to a complete range of support services. Most of all we believe in hope.  We will never ever give up the fight to find a cure. We are the Premiere Oncology Foundation.

While many other oncology centers provide some of these programs, POF is the only community-based center providing all these services in one centralized location, creating a continuum of care that is unique among local and national cancer centers. POF aims to provide a “single stop” experience for patients. Everything surrounding their care and treatment is conveniently located on one floor in one location, including a resource library, treatment rooms, hair solutions salon, workshop facilities, exercise facilities and counseling areas. A continuum of care is provided with a team of professional always accessible.

POF programs provide cancer patients with access to a full range of health care practitioners, and other oncology-related professionals that are unavailable in most practice settings. Access to these resources is vital to the health and welfare of these individuals.  

A panel of oncology experts comprised of Hematology & Oncology News & Issues’ editorial advisory board recently selected the Premiere Oncology Foundation as their HOPE(Hematology & Oncology Practice Excellence) award winner in the category of “Integration of Care.”  The award recognizes the importance of the intersection between the oncologist and practice manager, serving as the foundation of benchmarks tailored specifically for the community-based oncologist.

Premiere Oncology Foundation
2020 Santa Monica Blvd., Suite 600
Santa Monica, CA 90404
Phone: 310 570-1474

www.premiereoncology.org

Patients from Premiere Oncology can sign up for their own website at http://www.mylifeline.org/page.cfm?page=getstarted&ref=POF

If you are interested in partnering with us, please contact kim@mylifeline.org

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Tips for Helping a Friend with Cancer

June 7th, 2011 | Posted by mllblog in Caregivers/Friends and Family - (0 Comments)

MyLifeLine.org created a tip sheet on how to Help a Friend with Cancer.

Download the tip sheet.

Post comments below on actions you have taken to help a friend with cancer.

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MyLifeLine.org is Mobile! Now Cancer Patients can Access it from Anywhere!

May 17th, 2011 | Posted by mllblog in Cancer Centers/Cancer Nonprofits | Cancer Patients | Caregivers/Friends and Family | MyLifeLine.org News - (0 Comments)

Today we announce the first version of the mobile optimized website. If you have a smart phone, you can view some of the main features from your phone. With a mobile optimized version, we hope that patients and caregivers can access thier website on the go and make updates even if they don’t have access to a computer.

My Updates: Patients and Caregivers can add new My Updates and friends and family can view and comment on the udpates.

Guest Messages: Friends and family can leave inspiring messages  and the patient can read all the loving messages without having to get on their computer to catch up.

Helping Calendar: Patients and caregivers can add and edit events on the Helping Calendar. As well, as friends and family can sign up to help.

Photo Gallery: The photo gallery is viewable from a smartphone, but with this version, you won’t be able to upload a photo directly to the photo gallery.

 See below for a few screen shots from the mobile version. Tell someone you know with cancer about MyLifeLine.org today.

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Various Ways to Help A Friend With Cancer

April 20th, 2011 | Posted by mllblog in Cancer Patients | Caregivers/Friends and Family - (1 Comments)

There are many ways you can help a friend with cancer. I found this great piece on the Fresh Brewed Life, “ 15 Ways to Really Help a Friend with Cancer”. It mentions practical things you can do for a friend with cancer, like laundry or suggesting a “date” for your spouses because the spouse of a person with cancer is often neglected. Don’t forget about their children or spouse, offer to do fun and supportive things for them as well. Think outside of the box when trying to find ways to help your friend with cancer. Instead of baking them another lasagna, ask them what their favorite restaurant is and deliver their favorite meal with a DVD for a nice, relaxing  night in.

 In this article from Women’s Health Magazine a survivor speaks candidly about what not to do or say for a friend with cancer.

 If you know of other great tips, please comment below!

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Advocacy Spotlight on OncLive.com

April 18th, 2011 | Posted by mllblog in Cancer Patients | Caregivers/Friends and Family | MyLifeLine.org News - (0 Comments)

Check out this great spotlight about  MyLifeLine.org at  onclive.com . The article has a great overview of our history, features, initiatives and impact!

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Young Adult Cancer Awareness Week: April 3rd-9th

April 6th, 2011 | Posted by mllblog in Cancer Centers/Cancer Nonprofits | Cancer Patients | Caregivers/Friends and Family - (0 Comments)

Check out these organizations that provide resources and assistance to young adults with cancer.

First Descents

First Descents is committed to curing young adults of the emotional effects of cancer and empowering them to regain control of their lives by experiencing outdoor adventure therapy through kayaking, rock climbing and other outdoor adventure sports.

Fertile Hope

Fertile Hope is a LIVESTRONG initiative dedicated to providing reproductive information, support and hope to cancer patients and survivors whose medical treatments present the risk of infertility. If you have fertility-related questions or would like more information related to the Sharing Hope financial assistance program, call toll-free 866.965.7205 or complete an online intake form for the LIVESTRONG SurvivorCare program.

Hope For Two

The Pregnant with Cancer Network offers free support for women diagnosed with cancer while pregnant. We connect women who are currently pregnant with cancer with other women who have experienced a similar cancer diagnosis.

ReproTech, Ltd. Fertility Preservation Network

ReproTech, Ltd. is dedicated to offering safe and effective shipment and long term storage of reproductive tissue that has been originally cryopreserved at another laboratory or cryobank.

Ulman Cancer Fund for Young Adults

A leading voice in the young adult cancer movement, we are working at a grassroots level to support, educate, connect and empower young adult cancer survivors.

Young Survival Coalition – Breast cancer

Young Survival Coalition (YSC) is the premier global organization dedicated to the critical issues unique to young women who are diagnosed with breast cancer. YSC offers resources, connections and outreach so women feel supported, empowered and hopeful.

Here’s a long list of organizations that are part of the LIVESTRONG Young Adult Alliance. Check back later this week for a post on our favorite Break Cancer Videos…..

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Caregiver Tips Part 2: Caregiving For Your Loved One With Cancer

March 29th, 2011 | Posted by mllblog in Cancer Patients | Caregivers/Friends and Family - (0 Comments)

Part 2 of our Summary of Caregiving for Your Loved One with Cancer from CancerCare

In Part 1 I we reviewed the basic tips for caregivers. Part 2 is about long distance caregiving and taking care of yourself as a caregiver.

Don’t stress if your loved one is thousands of miles away. You can still be an integral part of their caregiving team.

Long Distance Caregiving:

  • Focus on what you can do. For example, schedule appointments, pay bills online, set up a personal website for them.
  • Make the most of your visits and try to schedule some visits during the week, so you can meet the appropriate doctors, etc. Plan some visits when your loved one has appointments scheduled.
  • Meet your loved ones neighbors when you visit, so they can check in on them and be your eyes and ears, when you’re gone.
  • Ask your loved ones local friends to help with tasks you can’t do from far way.

One of the most important things to remember is to take care of yourself as well.

Taking Care of Yourself

            Stay Healthy

  • Take time to exercise and keep yourself healthy.
  • Remember healthy eating habits. Pack healthy snacks for long hospital visits.
  • SLEEP!
  • REST! Practice deep breathing, mediation, and gentle stretching to decrease stress.
  • Don’t neglect your own check ups, screenings, and medications.

Getting Emotional Support

  • Allow yourself to take a break once in a while. Listen to music, or go on a quiet walk.
  • Be aware of your limits. You’re allowed to say no if you are over extended.
  • Journal your thoughts.
    • Don’t be afraid to ask other friends or family members for help. Keeping open lines of communication is best.
    • Visit with a mental health professional if you’re having bad feelings or worrying.
    • Seek out a support group for caregivers.
    • Don’t be too hard on yourself. Be realistic about how you can and cannot provide caregiving duties.

Lastly, here are some important final thoughts from the article on cargiving for your loved one.

  • Provide a way for other family members and friends to help. Set up a website at www.mylifeline.org to post visiting hours, meal delivery schedules, transportation needs, etc…(this isn’t mentioned in the article, but I thought I’d add it in!)
  • Check out respite care programs. If you need to run errands and can’t be with your loved one, you could schedule a respite caregiver.
  • Know your rights. Talk with your employer about what your options are for a leave of absence.
  • Call CancerCare ®  

Visit CancerCare’s Care Giver Support Page for more information.

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Welcome to our New Blog!

March 8th, 2011 | Posted by mllblog in Cancer Patients | Caregivers/Friends and Family | MyLifeLine.org News - (0 Comments)

When we created MyLifeLine.org, we wanted to help patients with the emotional part of their cancer by allowing their friends and family to be there for them.  Through website posts, helping calendars and most importantly encouraging words from loved ones, we’ve brought patient support groups into their home and hospital rooms.

We are working hard to make this experience even better with more medical resources, fundraising tips, and support information for friends and family. With Facebook and Twitter posts, emails and blogs we are making MyLifeLine.org a smaller community no matter the number of members. MyLifeLine.org is a resource for anyone going through cancer or anyone who knows someone with this awful disease. We want to hear from you and want you to help make MyLifeline.org part of your community.

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6 Reasons Every Cancer Patient Should Have a Personal Website

February 25th, 2011 | Posted by mllblog in Cancer Patients - (0 Comments)
  1. You won’t have to repeat your diagnosis, treatment plan, or treatment updates over and over.  You can post once, for everyone to read.
  2. You can ask for help with meals, rides, chores…. The possibilities are endless. Friends are always looking for ways to help.
  3. You’ll receive caring, loving messages from all of your friends.
  4. Your support network will grow larger than you ever imagined.
  5. You’ll feel connected to friends and family even if they’re thousands of miles away.
  6. You won’t have to keep up with long email chains or spend hours returning emails.

Get started today with your free website. Or tell a friend who was just recently diagnosed.

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